At least that was the joke when I went to visit mom on Monday! She had two bags of red cells being infused into her (almost like a flashback to transplant day). This, apparently, was after several hours of waiting for them to arrive... The staff had begun joking that they would have to open a blood bank downstairs in order to get the blood for mom (then the joke progressed to them needing to pay people for their blood). And when it finally arrived the staff joked they had to "jump" a guy on the street for it. I was in stitches when she told me their jokes, if you knew the staff you would know how funny this story would be coming from them!
But back to mom... So thanks to the recently reactivated CMV, (see previous blog) she's been inpatient since Saturday. So far everything seems to be going okay, though the nausea has increased a bit so her appetite is a bit off again. She's back on Bumex to prevent retention of fluids (especially with the risk this would pose to her now "healthy heart"). Unfortunately fluid retention is a side effective of the current antiviral, so we have to make sure she doesn't end up with another "litter of puppies" (the joke when she was getting liter upon liter of fluid off of her a few months ago is that she was giving birth to "puppies." Okay maybe we are too goofy, but ask her to tell you the story sometime and you will be laughing until your sides hurt!)
Again, back to the story... So mom's counts are low again due to the current regiment of antivirals so the risk of other infections, viruses, etc are high again. But this is not stopping her from her daily walks! She's a Walking Queen-bring it on you crazy "mall walkers" you ain't got nothin' on my momma! ;-) And on the bright side the walks help mom with her nausea, so we've been taking daily walks-she's even been permitted to go outside (with her mask on, of course). We even ended up walking about 3/4 mile on Monday, major points on her pedometer! Woot woot!
It's been a bittersweet week for mom and I. It has been wonderful catching up with all of the staff at the hospital! As always the staff is SUPER excited to see mom again-but it's a sad situation because she's back there because she's needing their professional care, instead of stopping by for a short visit. None-the-less they (and we) are loving our time together again! It's like a SNL episode but we get to experience it LIVE instead!
Well back to work at the office. I will try my best to keep you all updated. At this point mom may be outpatient this weekend or next week-we really have no way of knowing until the doctors tell us it's time for her to go home. Thanks again for the support everyone!
All my love,
Kate
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